For Enrolled Participants

Thank You for Participating in PPMI

The PPMI team and The Michael J. Fox Foundation have been overwhelmed by your willingness and enthusiasm to be part of the critical work going on in this study.

Thank you from the Parkinson’s communityIn the e-book, please find letters thanking you for participating in this critical research from patients, family members, caregivers and researchers. Click Here to Enlarge

Developments in PPMI

We want you to have a firsthand view of all that is happening on PPMI and how the scientific community is using the output of your efforts to advance Parkinson?s research.  Visit this site and sign up for email updates.

Participant Newsletters

Study Update Calls

Recent Posts

See all Enrolled Participants News >

How do researchers access PPMI data?

Downloading Data

We are often asked by participants if they can access the database. The kind of data included in the database isn?t terribly useful, since the data here is raw data and, without sophisticated analysis, doesn?t tell you much.  Remember, all information is blinded, so no one can tie a specific result to you as a participant.

Requesting Specimens

Similar to the data, this is where researchers come to request specimens from PPMI. Because the specimens are in limited supply, all applications are reviewed by a committee before samples are granted.

At the conclusion of 2015, the number of data downloads was over 485,000! 

See where in the world researchers are downloading PPMI Data, the number of downloads and specimen requests, the types of groups accessing the data.