Working Groups and Committees

The PPMI study has established the following Working Groups and Committees to provide continual input, expertise and support for the study in specific areas.

Working Groups:

The following working groups have been established to focus on targeted scientific and design aspects of the study and will be relied upon to lead key efforts in these areas. Working Group chairs are indicated for each group.

Cognitive/Behavioral Working Group
Daniel Weintraub, PhD (Chair) Associate Professor of Psychiatry, University of Pennsylvania
Tanya Simuni, PhD (Co-Chair) Associate Professor, Northwestern University

Sleep Working Group
Wolfgang Oertel, MD (Chair) Professor and Director, Philipps University Marburg

Statistics Working Group
Chris Coffey, PhD (Chair) Director, Statistical and Data Management Center, University of Iowa

Imaging Working Group
John Seibyl, MD (Chair) Molecular Neuroimaging, LLC

Biologics Working Group
Leslie Shaw, PhD (Co-Chair) Professor, University of Pennsylvania
John Trojanowski, MD, PhD (Co-Chair) Professor, University of Pennsylvania

Genetics Working Group
Andrew Singleton, PhD (Chair) Investigator, National Institute on Aging

Recruitment/Retention Working Group
Lana Chahine (Chair) Assistant Professor of Neurology, University of Pittsburgh

Website Working Group
Caroline Tanner, MD, PhD, FAAN, (Chair) University of California at San Francisco School of Medicine

Study Committees:

The following study committees have been identified. A brief description of each group?s charge is included below. Committee chairs are indicated for each group.

Clinical Study Oversight Committee (CSOC)
Responsible for safety monitoring and the protection of subjects for the study.
Ron Pfeiffer, MD (Chair) Professor, University of Tennessee

Data Use and Publications Committee
Provides formal oversight of use of study data, including permission to access study database, review of publications and citations as they see fit and decisions to incorporate new data into the database.
David Standaert, MD, PhD (Chair) John and Juanelle Strain Professor of Neurology, University of Alabama at Birmingham

Ancillary Studies Committee
Assess add-on studies that are proposed by investigators for inclusion in PPMI and work on integrating accepted studies into the overall initiative.
Caroline Tanner, MD, PhD, FAAN (Chair) University of California at San Francisco School of Medicine

Biospecimen Review Committee
Reviews and approves all specimen requests submitted through PPMI-info.org. Also works with investigators to craft full proposals and select appropriate samples for proposed studies.
Kalpana Merchant, PhD (Chair) President and Chief Scientific Officer, TransThera Consulting Co.

Patient Advisory Committee
Provides a patient perspective on key elements of study design, recruitment and retention efforts and communication.
Lana Chahine (Chair) Assistant Professor of Neurology, University of Pittsburgh