Publications

Publication of PPMI data and analysis speeds progress.

View a list of select publications below and submit your manuscript from research utilizing PPMI data. Read more below on our open access policy.

Publication categories

Primary publications

Authored by the Steering Committee, Investigators, Study Cores and Working Groups, reflecting the contribution of those authors. Primary Publications are defined as those reports, analyses, and publications identified by the PPMI SC as fulfilling the primary objectives of the study as stated in the PPMI protocol. Examples of these reports include publications detailing the baseline and longitudinal PPMI data and publications establishing and/or comparing clinical/imaging/biologic markers of Parkinson’s disease (PD) progression. “And The Parkinson’s Progression Markers Initiative*” will be written on the author line of the manuscript with an asterisk referring to the list of names of individuals identified on the PPMI Author List. The author list must be include as an appendix to ensure that all authors may be cited. All Primary Publications must collaborate with the PPMI Statistics Core and must be sent to both the PPMI Steering Committee and the PPMI DPC for review prior to journal submission. To submit to the SC, email ppmi@michaeljfox.org; to submit to the DPC, please upload the publication for review via the PPMI website.

Member-initiated publications

Authored by members of the Steering Committee, Investigators, Study Cores, and Working Groups. These publications do not meet the criteria to be Primary Publications and need not use the PPMI Statistics Core for their analysis. Examples include sub-group analyses and analyses of ancillary biomarkers. Authors must share the aims of the analysis early with the ESC, share the analysis with the PPMI Statistics Core prior to submission, and submit analytical datasets/statistical code to LONI as needed. As with Primary Publications, the phrase, “And The Parkinson’s Progression Markers Initiative*” should be included at the end of the named authors with an asterisk referring to the PPMI author list, which must be included as an appendix to ensure that all authors may be cited.

It is expected that investigators outside of the study will conduct research and seek to publish analyses using PPMI data and specimens. These individuals are encouraged to publish novel scientific findings that result from their research using PPMI. Authorship of such a publication will not include PPMI in the author line, but will acknowledge PPMI personnel and PPMI funding support as detailed in the PPMI Publications Policy and must be sent to the PPMI DPC for administrative review prior to journal submission.

Publications by PPMI Investigators

Date Title (click for link) Authors (hover/tap for full list) Journal/Publication

Other publications using PPMI data

Date Title (click for link) Authors (hover/tap for full list) Journal/Publication

Free Public Access to PPMI Publications

The intent of the PPMI publication policy is to provide for open, free, public access to analyses of PPMI data. Publications authored by the Steering Committee or by PPMI investigators using PPMI data shall be published in an open-access journal or in a hybrid open-access journal as a fully open access article, and/or posted to an open-access repository under the Creative Commons Attribution 4.0 Generic License (CC BY 4.0) or an equivalent license. BioRxiv (“Bio-Archive”: http://www.biorxiv.org/) is the preferred repository for PPMI publications. Publication under other, more restrictive licenses (e.g. CC-BY-SA) may be considered on a case-by-case basis. Under extraordinary circumstances, authors may request an exception to this policy by applying to the PPMI Executive Steering Committee. Authors may submit requests to PPMI’s sponsor, MJFF, to cover the fees required by a publisher to effect publication on the aforementioned terms. Requests for cost coverage of publication fees must be made prior to the author paying fees to the publisher. Requests for retroactive reimbursement for open access fees may be considered by MJFF on a case-by-case basis. External users of PPMI data are strongly encouraged to publish results in open-access journals or in a hybrid open-access journal as a fully open access article, and/or post to open repositories.