Research Documents & SOPs

Study Protocol and Schedule

PPMI was designed with a strong focus on developing standardized protocols for collecting, transferring and storing clinical and imaging data and biological samples. The following documents outline the overall goals, objectives and processes involved in the study to guide the PPMI clinical sites in the collection of data and specimens.  To view the historical versions of these documents, please visit the Archive of Study Protocols.

*Updated case report forms will
be posted shortly.* 


Data Collection Standards and Processes

The following documents have been developed to provide step-by-step detail of the sample collection processes to guide PPMI cores and clinical sites in following the study protocol:

MRI-Manual_thumbnail DTI_Manual Genetics-Manual_thumbnail

In addition, the study processing maps below outline the path each sample will take through the acquisition, aliquoting, storage and shipping processes from the clinical sites to the study biorepository and, eventually, to the researcher.


Data and Biospecimen Use Agreements and Policies

The success of PPMI hinges on the sharing of research results from the widespread use of the data and specimens. Below are links to the policies that govern the use of PPMI data and specimens:

Click here to view PPMI publications and presentations.