Tag Archive | "Progress toward recruitment goals"

PPMI Annual Meeting 2015 Summary

Nearly 150 PPMI investigators, coordinators, study cores, patient advisory and steering committee members, sponsors, and industry partners from around the world met in New York City May 13-14, 2015 to share PPMI updates and to discuss the future of the initiative. View the meeting's presentations.

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PPMI Expands to Include Individuals with GBA Mutation

PPMI will now be following individuals with a GBA mutation as part of the Genetic Cohort. In addition to being linked to Parkinson's disease, GBA mutations can cause Gaucher disease. A GBA mutation is more common among certain populations, specifically those of Ashkenazi (Eastern European) Jewish descent. Read the full press release here.

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Core Focus: the Genetics Coordination Core

The PPMI study cores are responsible for a wide range of study needs including analyzing, storing, and performing quality control measures on the study data and specimens, providing supplies, guidance, and support to study sites, and performance and study management. In this core spotlight, Genetics Coordination Core Principal Investigator Tatiana Foroud, PhD and her team explain their role in PPMI.

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Understanding the Genetic Widespread Recruitment Initiative

The Widespread Recruitment Initiative (WRI) is an internet-based recruitment tool that allows potential PPMI participants to be screened, consented and provided with LRRK2 testing without having to visit a PPMI site. Find out how the process works.

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Summary of the PPMI Genetic Cohort Kick-Off Meeting

The PPMI Genetic Cohort Kick-Off Meeting took place on September 16th & 17th in New York, NY. Site Investigators, study staff, Study Core members, and members of the Steering Committee attended the two-day meeting to discuss the launch of the new Genetic Cohort in PPMI. The meeting covered the rationale for the new cohort, lessons learned from previous studies, and operational procedures.

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First prodromal subject enrolled in PPMI

Today marks a critical milestone for the PPMI study. The University of Alabama at Birmingham (UAB) has enrolled the first subject in the Prodromal Cohort of PPMI. UAB is one of eight sites currently participating in the recruitment of REM Sleep Behavior Disorder (RBD) subjects for the Prodromal Cohort, and this first enrolled subject qualified for the RBD Prodromal arm of the study

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PPMI Recruitment Finishes, Complete Cohort Baseline Analysis Coming Soon

PPMI has now finished recruiting the 400 de novo PD and 200 control subjects the study originally set out to identify. This is an important milestone for the study and for those wishing to take advantage of its growing dataset. Already, more than 54,000 downloads have been made from scientists in 37 countries across the globe. In the coming months, the PPMI Steering Committee plans to present at various meetings and publish a paper that will reference the baseline data as a description of the 600+ participants enrolled in PPMI.

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Participant Profile: Taking on Parkinson’s Together

Meet Alison and Bob Wachstein of Weston, Connecticut who are participating in PPMI together.

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Help us thank the PPMI volunteers who make this effort possible

Many of you have benefited from being able to access the enormous amount of data and specimens being collected via PPMI. But, as we all know, those precious resources don?t fall from the sky. They come from the 600 PPMI subjects who have committed to the rigorous battery of tests and assessments involved in PPMI. And they […]

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All These People, Working for Us

PPMI Patient Committee member, Peter Burne, reflects on his experience attending the PPMI Annual Meeting in early May in New York City.

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