Tag Archive | "General Information"

New Feature: Archive of Study Protocols

An archive of study protocols and schedules of activities is now available. The archive provides a clear history of the study's progress and serves as a resource for researchers using the PPMI database and biospecimens.

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PPMI Biosamples Webinar Posted

PPMI's principal investigator, Ken Marek, MD, and The Michael J. Fox Foundation's Mark Frasier, PhD held the PPMI Progress Update: Available Data and Biosamples webinar, covering an overview of PPMI, some initial findings, and the process for accessing the PPMI clinical data, imaging data, and biospecimens. A recording of the webinar is now available.

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PPMI Annual Meeting 2014 Summary

On May 6 and 7, PPMI held its 2014 Annual Investigators Meeting in New York, NY. Participants included site investigators and coordinators, study and sponsor staff, industry partners, and Steering Committee, Patient Advisory Committee, and study core members representing 15 countries and about 60 companies and organizations. View this year's presentations.

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Important Update Regarding PPMI CSF Data

A letter from the PPMI Steering Committee regarding the status of CSF Data.

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New Feature: PPMI Baseline Data Summary Pages

With the collection of the baseline data from the de novo PD and Health Control subjects complete, PPMI has made Baseline Summary tables available to researchers with access to the database. These pages give researchers a snapshot of what the Baseline Data looks like.

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PPMI Profiled in ‘Practical Neurology’

A summary of the Parkinson's Progression Markers Initiative (PPMI) was recently published in Practical Neurology. The article gives a detailed account of the history and rationale of the study, as well as an overview of the study protocol. The newly added Prodromal and Genetic cohorts are also described in detail, as well as the potential overlap with the Alzheimer's Disease Neuroimaging Initiative (ADNI).

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Participant Newsletters are now available on the website

A new feature has been added to the Enrolled Participants section of the site! To keep study participants apprised of exciting news in PPMI, we send Newsletters tailored specifically for participants directly to our volunteers. Now, participants can access these newsletters on the website.

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Update on New Prodromal Cohort Added to PPMI

This March, the Parkinson?s Progression Markers Initiative (PPMI) will launch a new study arm to enroll and follow a prodromal Parkinson?s disease (PD) cohort.   Defining a pre-diagnostic or prodromal phase for PD presents both an immediate challenge ? how to reliably identify individuals during this prodromal period at high risk to phenoconvert to PD ? […]

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Help us thank the PPMI volunteers who make this effort possible

Many of you have benefited from being able to access the enormous amount of data and specimens being collected via PPMI. But, as we all know, those precious resources don?t fall from the sky. They come from the 600 PPMI subjects who have committed to the rigorous battery of tests and assessments involved in PPMI. And they […]

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PPMI subject and site PI featured on “Arizona Illustrated”

Dr. Holly Shill, PI at Banner Sun Health, and PPMI subject Kistie Sharp were interviewed on KUAT-TV?s ?Arizona Illustrated?. They spoke about hopes for finding a biomarker for PD and motivation for joining PPMI.

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