Tag Archive | "For Prospective Participants"

Michael J. Fox Foundation Press Release Announces PPMI Genetic Cohort

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PPMI focus on hyposmia featured in Neurology Now

Neurology Now, the magazine for patients and caregivers published by the American Academy of Neurology, featured an article profiling Michael J. Fox and the importance of participating in research. The PPMI prodromal cohort and the recruitment of individuals with hyposmia was highlighted as an exciting way for readers to get involved. In addition to providing a link to the Smell Survey, the article describes some of the science behind the link between hyposmia and Parkinson's Disease.

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New feature: Listen to Participant Study Update Calls

As part of a new effort to keep enrolled participants apprised of the progress in PPMI, PI Ken Marek hosted an hour-long teleconference to discuss general study updates and answer questions from participants. This teleconference was the first in a new series of participant study update calls, which are scheduled to occur about four-times a year. For participants who were unable to join the call or who would like to listen to the update again, a new section to the website has been added where we will archive these recordings. The participant calls and newsletters can now be accessed by visiting www.ppmi-info.org/participants.

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PPMI Site PI interviewed on NECN Morning Show

Dr. Samuel Frank, PPMI Site PI at Boston University, made a recent appearance on the New England Cable News (NECN) Morning Show to talk about the PPMI Prodromal Cohort. Dr. Frank discussed the link between hyposmia and PD, and the rationale behind adding a this new cohort.

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Prodromal recruitment featured in Boston University news

The Boston University Medical Center (BUMC) news blog released an article this week focusing on the PPMI Prodromal Cohort. Dr. Sam Frank, PPMI Site PI at BUMC, explained the importance of this new cohort - "Understanding risk factors for Parkinson's disease could help to identify therapies that may prevent the onset of motor symptoms in future generations of PD". The article also directs readers to the Smell Survey on the MJFF website.

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Check out the PPMI ‘Smell & Your Brain’ infographic

The Michael J Fox Foundation for Parkinson's Research has designed and released a "Smell and Your Brain" Infographic to bolster recruitment for the PPMI hyposmia arm. MJFF posted the infographic on facebook and other social media outlets, and the infographic was picked up by hundreds of local online news outlets, including the LA Times.

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PPMI Site OHSU featured in local media for Prodromal Cohort

Recruitment of hyposmic subjects in PPMI at the Oregon Health & Science University in Portland, Oregon was the focus of multiple online news articles . The Lund Report, KGW.com, Oregon Health & Science University News, KEX Portland,and The Columbian reported on PPMI efforts to identify individuals with a reduced sense of smell for enrollment in the prodromal cohort.

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Smell Identification Test in PPMI subject of podcast on UAB blog

Yesterday, PPMI Site PI David Standaert was featured on a podcast discussing PPMI and the recruitment of hyposmic subjects into the prodromal cohort using the University of Pennsylvania Smell Identification Test (UPSIT). The podcast was a feature on The Mix at UAB, a news blog from the University of Alabama at Birmingham's research department.

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Local online newsmagazine profiles PPMI at Emory University

The Atlanta Business Chronicle recently published an article featuring PPMI at Emory University. PPMI Site PI Stewart Factor was interviewed for the piece, and highlighted the clinical significance of the prodromal cohort.

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MJFF hosts Webinar featuring PPMI PI Ken Marek

On June 27th, the Michael J. Fox Foundation (MJFF) hosted a Hot Topics in Parkinson's Disease Webinar featuring Ken Marek, PPMI Principal Investigator and President of the Institute for Neurodegenerative Disorders, and Mark Frasier, MJFF Vice President of Research Programs. The webinar focused on the role of biomarkers in clinical care and research, and an overview of PPMI.

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