Tag Archive | "For Enrolled Participants"

Michael J. Fox Foundation Press Release Announces PPMI Genetic Cohort

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New Approved Specimen Request

A request for PPMI biospecimens has recently been approved by the Biospecimen Review Committee (BRC). The researchers at the University of Salerno will investigate the utility of IGF-1 levels and dopamine transporter (DaT) uptake as a biomarker for cognitive dysfunction in early PD by measuring IGF-1 in serum samples and analyzing DaT imaging data from 400 PD and 200 healthy control subjects at baseline.

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Thank you to the PPMI participants

Many of you in the scientific community have benefited from being able to access the enormous amount of data and specimens being collected as a result of the enormous contribution of over 650 PPMI participants, who have committed to the rigorous battery of tests and assessments involved in PPMI. To recognize the enormous contribution PPMI participants are making, the PPMI team and The Michael J. Fox Foundation collected letters from the Parkinson?s community, patients, family members, caregivers and researchers, thanking them for their tremendous contribution to Parkinson?s research.

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New feature: Listen to Participant Study Update Calls

As part of a new effort to keep enrolled participants apprised of the progress in PPMI, PI Ken Marek hosted an hour-long teleconference to discuss general study updates and answer questions from participants. This teleconference was the first in a new series of participant study update calls, which are scheduled to occur about four-times a year. For participants who were unable to join the call or who would like to listen to the update again, a new section to the website has been added where we will archive these recordings. The participant calls and newsletters can now be accessed by visiting www.ppmi-info.org/participants.

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MJFF hosts Webinar featuring PPMI PI Ken Marek

On June 27th, the Michael J. Fox Foundation (MJFF) hosted a Hot Topics in Parkinson's Disease Webinar featuring Ken Marek, PPMI Principal Investigator and President of the Institute for Neurodegenerative Disorders, and Mark Frasier, MJFF Vice President of Research Programs. The webinar focused on the role of biomarkers in clinical care and research, and an overview of PPMI.

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PPMI subject of Podcast featured on MichaelJFox.org

On June 6th, 2013, PPMI was featured on The Michael J Fox Foundation for Parkinson's Research Foxfeed Blog. MJFF Contributing Editor Dave Iverson interviewed the Foundation's Vice President of Research Programs Mark Frasier, PhD in a podcast with the goal of informing patients about some of the preliminary findings of PPMI.

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Update on New Prodromal Cohort Added to PPMI

This March, the Parkinson?s Progression Markers Initiative (PPMI) will launch a new study arm to enroll and follow a prodromal Parkinson?s disease (PD) cohort.   Defining a pre-diagnostic or prodromal phase for PD presents both an immediate challenge ? how to reliably identify individuals during this prodromal period at high risk to phenoconvert to PD ? […]

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Researchers Publish First Paper Using PPMI Data

Daniel Weintraub, MD, and a team at the University of Pennsylvania publish the first paper using PPMI data demonstrating that Parkinson's itself does not confer a higher risk for ICDs, supporting other research that suggests the high prevalence of ICDs in people with PD is related to Parkinson's medications, and not the disease itself.

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Participant Profile: Taking on Parkinson’s Together

Meet Alison and Bob Wachstein of Weston, Connecticut who are participating in PPMI together.

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Keeping participants engaged over time: PPMI retention events

Retention is quickly becoming a key priority as over half of the PD cohort in PPMI is recruited. PPMI retention events are proving to be an important strategy to bring PPMI participants together, share study updates and answer questions.

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