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PPMI Prodromal Profiled in UK Financial Times

Financial Times, a UK-based newspaper, recently profiled PPMI site Imperial College London (ICL) and the recruitment of hyposmic individuals. The article focuses on the link between olfactory dysfunction and Parkinson's disease, and gives a recap of the efforts the PPMI team at ICL have done attempting to recruit for this new prodromal cohort.

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PPMI Site PI interviewed on NECN Morning Show

Dr. Samuel Frank, PPMI Site PI at Boston University, made a recent appearance on the New England Cable News (NECN) Morning Show to talk about the PPMI Prodromal Cohort. Dr. Frank discussed the link between hyposmia and PD, and the rationale behind adding a this new cohort.

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Summary of the PPMI Genetic Cohort Kick-Off Meeting

The PPMI Genetic Cohort Kick-Off Meeting took place on September 16th & 17th in New York, NY. Site Investigators, study staff, Study Core members, and members of the Steering Committee attended the two-day meeting to discuss the launch of the new Genetic Cohort in PPMI. The meeting covered the rationale for the new cohort, lessons learned from previous studies, and operational procedures.

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Prodromal recruitment featured in Boston University news

The Boston University Medical Center (BUMC) news blog released an article this week focusing on the PPMI Prodromal Cohort. Dr. Sam Frank, PPMI Site PI at BUMC, explained the importance of this new cohort - "Understanding risk factors for Parkinson's disease could help to identify therapies that may prevent the onset of motor symptoms in future generations of PD". The article also directs readers to the Smell Survey on the MJFF website.

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Check out the PPMI ‘Smell & Your Brain’ infographic

The Michael J Fox Foundation for Parkinson's Research has designed and released a "Smell and Your Brain" Infographic to bolster recruitment for the PPMI hyposmia arm. MJFF posted the infographic on facebook and other social media outlets, and the infographic was picked up by hundreds of local online news outlets, including the LA Times.

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PPMI Site OHSU featured in local media for Prodromal Cohort

Recruitment of hyposmic subjects in PPMI at the Oregon Health & Science University in Portland, Oregon was the focus of multiple online news articles . The Lund Report, KGW.com, Oregon Health & Science University News, KEX Portland,and The Columbian reported on PPMI efforts to identify individuals with a reduced sense of smell for enrollment in the prodromal cohort.

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PPMI to host Genetics Cohort Kick-Off meeting in New York, NY in September

Next month, PPMI Steering Committee members have invited clinical site teams and study core members to attend a two-day meeting in New York to kick-off the launch of the new Genetic Cohort. The meeting will feature presentations from the study cores, an overview of the amended study protocol, and recruitment strategies.

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First prodromal subject enrolled in PPMI

Today marks a critical milestone for the PPMI study. The University of Alabama at Birmingham (UAB) has enrolled the first subject in the Prodromal Cohort of PPMI. UAB is one of eight sites currently participating in the recruitment of REM Sleep Behavior Disorder (RBD) subjects for the Prodromal Cohort, and this first enrolled subject qualified for the RBD Prodromal arm of the study

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Participant Newsletters are now available on the website

A new feature has been added to the Enrolled Participants section of the site! To keep study participants apprised of exciting news in PPMI, we send Newsletters tailored specifically for participants directly to our volunteers. Now, participants can access these newsletters on the website.

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Share your thanks with PPMI study participants

Take a few minutes to write a letter of thanks to the PPMI participants who are making this study possible.

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