Opportunity for Funding and Access to Data and Specimens

Using a single application, qualified researchers may request access to clinical data and biospecimens from a collection of studies exploring promising areas in Parkinson?s research, including PPMI. The Michael J. Fox Foundation for Parkinson?s Research (MJFF) is also offering funding for use and analysis of the available information and materials.  Applicants may request up to $250,000 over two years. Researchers may request access to the resources with or without funding requests.  Access Data & Biospecimens is a rolling deadline program.  To be considered for the May 2014 review, submit your request by April 14th.

Participating studies:

  • Parkinson?s Progression Markers Initiative (PPMI)
  • LRRK2 Cohort Consortium ? assembling and studying cross-sectional cohorts in nine countries, including China, consisting of subjects with and without PD who carry mutations in the LRRK2 gene
  • BioFIND ? cross-sectional clinical study, sponsored by MJFF with support from NINDS, designed to discover and verify new biomarkers of Parkinson?s disease (PD)
  • Arizona Parkinson?s Disease Consortium ? brain and body donation program that enrolls healthy individuals and individuals with PD, Alzheimer?s disease and other neurologic disorders
  • DATATOP ? intervention trial, conducted by the Parkinson Study Group in the late 1980s, and a long-term study on the effect of deprenyl and tocopherol (a form of vitamin E) on the progression of early PD
  • 24-Hour Biofluids ? collected biospecimens (cerebrospinal fluid and blood) over 24 hours at 11 different time points to understand the inter-subject variability and intra-subject variability of putative biomarkers in PD
  • Rush University Brain Bank ? one of the leading collections of brain samples and spinal tissue in the world, which includes a diverse group of subject types, including PD, progressive supranuclear palsy and healthy controls
  • PD Smartphone Data Challenge ? data passively collected from individuals with and without PD using simple sensors and tracking technology on a smartphone
  • Pre-clinical Tissue ? more than 30 different central nervous system (CNS) and non-CNS tissues are collected and stored from pre-clinical models genetically engineered to exhibit a PD-like phenotype

Important Access Data & Biospecimens Dates:

March 24: Informational Conference Call

MJFF will hold a 45-minute conference call on Monday, March 24th at 12 pm ET to clarify and explain the goals of this initiative and to answer applicant questions. To participate in the call and receive call-in details, please RSVP via email to conferencecalls@michaeljfox.org.

April 14: Applications due

To learn more about this funding opportunity and the resources available, and to request access to data, click here.