Archive | October, 2013

MJFF Funding for Data & Biospecimen analysis, including PPMI

Qualified researchers may now request access to clinical data and biospecimens from a collection of studies exploring promising areas in Parkinson?s research, including PPMI. The Michael J Fox Foundation for Parkinson's Research (MJFF) is also offering funding for use and analysis of the available information and materials to progress therapeutic and disease-modifying treatments. In December, MJFF will conduct its final review of this year's submissions for access to biospecimens or data and for grants of up to $250,000 over two years.

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PPMI Prodromal Profiled in UK Financial Times

Financial Times, a UK-based newspaper, recently profiled PPMI site Imperial College London (ICL) and the recruitment of hyposmic individuals. The article focuses on the link between olfactory dysfunction and Parkinson's disease, and gives a recap of the efforts the PPMI team at ICL have done attempting to recruit for this new prodromal cohort.

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PPMI Profiled in ‘Practical Neurology’

A summary of the Parkinson's Progression Markers Initiative (PPMI) was recently published in Practical Neurology. The article gives a detailed account of the history and rationale of the study, as well as an overview of the study protocol. The newly added Prodromal and Genetic cohorts are also described in detail, as well as the potential overlap with the Alzheimer's Disease Neuroimaging Initiative (ADNI).

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NY Stem Cell Foundation partners with PPMI

Last week, The New York Stem Cell Foundation (NYSCF) Research Institute announced in a press release that they will partner with PPMI to generate stem cell lines from PPMI participants. The stem cell lines will used to understand the etiology and progression of the disease as compared to the existing and future biomarker data in the PPMI database.

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New feature: Listen to Participant Study Update Calls

As part of a new effort to keep enrolled participants apprised of the progress in PPMI, PI Ken Marek hosted an hour-long teleconference to discuss general study updates and answer questions from participants. This teleconference was the first in a new series of participant study update calls, which are scheduled to occur about four-times a year. For participants who were unable to join the call or who would like to listen to the update again, a new section to the website has been added where we will archive these recordings. The participant calls and newsletters can now be accessed by visiting www.ppmi-info.org/participants.

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PPMI Site PI interviewed on NECN Morning Show

Dr. Samuel Frank, PPMI Site PI at Boston University, made a recent appearance on the New England Cable News (NECN) Morning Show to talk about the PPMI Prodromal Cohort. Dr. Frank discussed the link between hyposmia and PD, and the rationale behind adding a this new cohort.

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Summary of the PPMI Genetic Cohort Kick-Off Meeting

The PPMI Genetic Cohort Kick-Off Meeting took place on September 16th & 17th in New York, NY. Site Investigators, study staff, Study Core members, and members of the Steering Committee attended the two-day meeting to discuss the launch of the new Genetic Cohort in PPMI. The meeting covered the rationale for the new cohort, lessons learned from previous studies, and operational procedures.

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