PPMI Site Status

PPMI Enrollment Status

Genetic Cohort Participants
Enrollment Goal: 600

Genetic Registry Participants
Enrollment Goal: ~600

De Novo PD Participants
Enrollment: 424

Control Participants
Enrollment: 196

Subjects with SWEDD
Enrollment: 64

Prodromal Participants
Enrollment: 65

Last Update: September 5 2017


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Clinical Sites & Recruitment Get updates: Email RSS

PPMI iPSC Lines — A Valuable Tool for Researchers

Mar 23, 2017

The Parkinson’s Progression Markers Initiative (PPMI) has expanded to include the generation of induced pluripotent stem cell (iPSC) lines from reprogrammed peripheral mononuclear blood cells (PBMCs) collected from PPMI participants. Study leadership hopes to complete 135 blood collections by the end of 2017; to date, over 50 PPMI participants have given blood samples. Cells lines […]

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2016 PPMI Annual Meeting held in New York City

May 20, 2016

The 2016 PPMI annual meeting took place on May 4-5 in New York City.  The meeting brought together 175 PPMI stakeholders from around the world, including PPMI leadership, site principal investigators, site coordinators and industry partners.  During the two day meeting, there was discussion of the data coming out of PPMI to date, plans for the […]

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Reform Movement and The Michael J. Fox Foundation Team Up for Study Investigating Genetic Mutations Common in Jews

Mar 27, 2015

Religious Action Center of Reform Judaism Director Rabbi Jonah Pesner: “This study provides an important opportunity to help potentially stamp out an insidious disease and reflects the Jewish imperative toward pikuach nefesh, the saving of a life.”

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Understanding the Genetic Widespread Recruitment Initiative

Aug 12, 2014

The Widespread Recruitment Initiative (WRI) is an internet-based recruitment tool that allows potential PPMI participants to be screened, consented and provided with LRRK2 testing without having to visit a PPMI site. Find out how the process works.

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PPMI Annual Meeting 2014 Summary

Jun 5, 2014

On May 6 and 7, PPMI held its 2014 Annual Investigators Meeting in New York, NY. Participants included site investigators and coordinators, study and sponsor staff, industry partners, and Steering Committee, Patient Advisory Committee, and study core members representing 15 countries and about 60 companies and organizations. View this year's presentations.

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PPMI Prodromal Profiled in UK Financial Times

Oct 30, 2013

Financial Times, a UK-based newspaper, recently profiled PPMI site Imperial College London (ICL) and the recruitment of hyposmic individuals. The article focuses on the link between olfactory dysfunction and Parkinson's disease, and gives a recap of the efforts the PPMI team at ICL have done attempting to recruit for this new prodromal cohort.

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PPMI Site PI interviewed on NECN Morning Show

Oct 10, 2013

Dr. Samuel Frank, PPMI Site PI at Boston University, made a recent appearance on the New England Cable News (NECN) Morning Show to talk about the PPMI Prodromal Cohort. Dr. Frank discussed the link between hyposmia and PD, and the rationale behind adding a this new cohort.

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Summary of the PPMI Genetic Cohort Kick-Off Meeting

Oct 3, 2013

The PPMI Genetic Cohort Kick-Off Meeting took place on September 16th & 17th in New York, NY. Site Investigators, study staff, Study Core members, and members of the Steering Committee attended the two-day meeting to discuss the launch of the new Genetic Cohort in PPMI. The meeting covered the rationale for the new cohort, lessons learned from previous studies, and operational procedures.

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Prodromal recruitment featured in Boston University news

Sep 26, 2013

The Boston University Medical Center (BUMC) news blog released an article this week focusing on the PPMI Prodromal Cohort. Dr. Sam Frank, PPMI Site PI at BUMC, explained the importance of this new cohort - "Understanding risk factors for Parkinson's disease could help to identify therapies that may prevent the onset of motor symptoms in future generations of PD". The article also directs readers to the Smell Survey on the MJFF website.

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Check out the PPMI ‘Smell & Your Brain’ infographic

Sep 18, 2013

The Michael J Fox Foundation for Parkinson's Research has designed and released a "Smell and Your Brain" Infographic to bolster recruitment for the PPMI hyposmia arm. MJFF posted the infographic on facebook and other social media outlets, and the infographic was picked up by hundreds of local online news outlets, including the LA Times.

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