Government/Public Sector Entities
National Institute of Neurological Disorders and Stroke (NINDS)
The mission of the NINDS is to reduce the burden of neurological disease—a burden borne by every age group, every segment of society, and people all over the world. To accomplish this goal the NINDS supports and conducts basic, translational, and clinical research on the normal and diseased nervous system. The Institute also fosters the training of investigators in the basic and clinical neurosciences, and seeks better understanding, diagnosis, treatment, and prevention of neurological disorders.
ClinicalTrials.gov is a registry of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial’s purpose, who may participate, locations, and phone numbers for more details.
National Institute of Environmental Health Sciences (NIEHS)
The mission of The National Institute of Environmental Health Sciences (NIEHS) is to reduce the burden of human illness and disability by understanding how the environment influences the development and progression of human disease.
Other disease research organizations and resources
Alzheimer’s Disease Neuroimaging Initiative (ADNI)
The Alzheimer’s Disease Neuroimaging Initiative(ADNI) study’s goal is to define the rate of progress of mild cognitive impairment and Alzheimer’s disease, to develop improved methods for clinical trials in this area, and to provide a large database which will improve design of treatment trials. We expect that this project will provide information and methods which will help lead to effective treatments for Alzheimer’s disease, leading to effective prevention.
Track Huntington’s Disease (Track-HD)
TRACK-HD is a major new multi-national prospective, observational biomarker study of pre-manifest and early stage Huntington’s disease (HD) with no experimental treatment. TRACK-HD is part of the worldwide collaborative Huntington Project funded by the CHDI Foundation, Inc.
Michael J Fox Foundation
The Michael J. Fox Foundation is dedicated to finding a cure for Parkinson’s disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson’s today.
Parkinson’s Disease Online Research (PDOR)
PD Online Research is a web-based community of Parkinson’s disease scientists, clinicians, healthcare providers, drug makers and funders. Its goal is to encourage timely sharing of ideas and information and foster debate to speed up research progress, therapeutic development and smart decision-making by scientists and funders.
Parkinson’s Disease Foundation (PDF)
The Parkinson’s Disease Foundation (PDF) is a leading national presence in Parkinson’s disease research, education and public advocacy. It funds promising scientific research to find the causes of and a cure for Parkinson’s while supporting people with Parkinson’s, their families and caregivers through educational programs and support services.
National Parkinson Foundation (NPF)
The National Parkinson Foundation (NPF) works to address the unmet needs in Parkinson’s care and treatment, and to improve the quality of Parkinson’s care through research, education and outreach.
The American Parkinson Disease Association (APDA)
The American Parkinson Disease Association (APDA) is the country’s largest grass roots organization serving the Parkinson’s community. Its goal is to “ease the burden and find a cure” for Parkinson’s disease. The organization focuses its energies on research, patient support, education and raising public awareness of the disease.
Parkinson Study Group (PSG)
The Parkinson Study Group (PSG) is a non-profit, cooperative group of Parkinson’s disease experts from medical centers in the United States and Canada who are dedicated to improving treatment for persons affected by Parkinson’s disease.
Parkinson’s Action Network (PAN)
Parkinson’s Action Network (PAN) is the unified voice of the Parkinson’s community advocating for better treatments and a cure. In partnership with other Parkinson’s organizations and our powerful grassroots network, we educate the public and government leaders on better policies for research and an improved quality of life for people living with Parkinson’s.
Neurology Associations and Organizations
Movement Disorder Society (MDS)
The Movement Disorder Society (MDS) is an international professional society invested in the research and care of patients with Movement Disorders.
American Academy of Neurology (AAN) Movement Disorders Section
The American Academy of Neurology (AAN) Movement Disorders Section enhances the education, research, and patient care skills of physicians in the area of Movement Disorders, and encourages basic and clinical investigation in the area of Movement Disorders.
European PD Organization
European Parkinson’s Disease Association (EPDA)
The European Parkinson’s Disease Association (EPDA) is a non-political, non-religious, and non-profit making organisation concerned with the health and welfare of people living with Parkinson’s disease and their families and carers. Its goal is to ease the lives of people with Parkinson’s disease and their families and carers by promoting a constructive dialogue between science and society, and by encouraging and supporting the development of national PD organisations.
European Network for Parkinson’s Disease (EuroPa)
EuroPa is a non-profit, cooperative network of experts from European medical centers aiming at the improvement of clinical research and treatment for persons with Parkinson’s disease.